How to participate in the creation of an efficient clinical protocol
At Transparency Life Sciences, we believe that with your direct input we can design clinical protocols that are more efficient, patient-centric and less expensive. Our goal is to achieve a 60-80% reduction in overall trial costs.
We base our company on three pillars of excellence that include:
- Collaborative intelligence: Harnessing a wide net of stakeholders via crowd-sourcing
- Full transparency at all stages of clinical development (vital for building trust and enagement in the crowd-sourcing process)
- Digitization of the development process (web-based platform, integrating multiple real-time data input via telemedicine)
To that end, we request that our members follow these ethical and professional guidelines:
- Keep it relevant.
For everyone's benefit, please stay on topic. The Transparency Site is provisioned to allow participants to help Transparency Life Sciences improve ongoing clinical projects. Please refrain from discussing personal matters, abusing any company or product, or, in general, from posting in a manner unrelated to a protocol, project, or challenge question.
- Keep it courteous.
Everyone wants to make a positive contribution while on the site. In particular, please refrain from posting anything unlawful, libelous, defamatory, obscene, pornographic, indecent, lewd, harassing, threatening, harmful, invasive of privacy or publicity rights, abusive, inflammatory or otherwise objectionable or injurious to third parties. Your opinions are always welcome, but personal attacks and harassment ('flaming') within the Transparency Site or through private messaging is not acceptable.
- Keep it spam-free.
This community is provided as a service to Transparency Life Sciences members and is not intended for the promotion of third party services, products, websites, or organizations. Please refrain from posting content that would constitute advertising, junk mail, spam, chain letters, or any other form of unauthorized solicitation.
- Keep it legal.
It is unacceptable to post any material (i) that would infringe on any patent, trademark, trade secret, copyright, or other proprietary rights of any party, (ii) that contains software viruses or any other computer code or files that are designed to disrupt, damage, or limit the functioning of any software or hardware, (iii) that is deemed to be illegal by any local, state, federal, or international law, rule or regulation, or (iv) that suggests or encourages illegal activity.
- Be careful.
Most people are happy to help out on the Transparency Site, but remember that their advice is theirs only, and that you are responsible for deciding whether to follow it. If the advice given by a participant sounds wrong to you, please don't try it.
- Within a project the Transparency system will prompt you with specific TLS Protocol Builder questions. Each question will have short scientific statements providing background information. Please try answering the question as best you can, either by selecting from a set of possible choices, or by typing a concise answer. Later, via our forum process, you'll have the chance to discuss in more detail the nuances related to the project or question. Each group of TLS Protocol Builder questions has a different level of difficulty and information requirements. Some questions ask for only limited input, while others contain detailed criteria. In such cases where confidential criteria questions are asked, we will put you into password-protected areas of the Site ("Secure Sessions.")
- Taking your insights into account, our scientific advocates will combine your suggestions with other responses. Transparency will present to the larger community the combined insights, corrections, and solutions that will make the protocol better.
- By making your ideas available for specific TLS Protocol Builder solutions, you are earning Transparency currency ('points') which are convertible into different awards as specified for each project. There may be unorthodox concepts presented in this forum. Please do not be put off by strong reactions, they are being posted to stimulate your mind and result in dramatic improvements in the design of proposed clinical trials.
Transparency is designed to make your use of its site enjoyable, and we will update postings related to the results of Proposed Solutions and Awards paid as frequently as possible. However, we do not guarantee that the postings or content on this Site will be current at all times. Furthermore, please understand that you may create a Proposed Solution for a Transparency Challenge that may have a recently Accepted Solution, and for which the Award has already been earned, and for which we have not yet updated the Site to reflect such payment.
- TLS Protocol Builder Questions will be presented in survey format, along with short scientific statements providing you with pivotal information, corresponding literature links, and context. A key Challenge question will also be presented, along with a computer prompt/survey that captures your answer.
The Transparency Survey system records responses through two different methods:
- Cookies (Web Link Collector)
- Actual survey link (Email Invitation to take a Survey)
In either case, the [Next] or [Done] button must be clicked on the bottom of the survey page. If you do not fully progress to the next page by clicking on the [Next] or [Done] button, your input will not be saved.
- Navigation Buttons:
Navigation Buttons have been created to help you and other members move through the survey pages. You have the ability to customize the text for the navigation links under the Design Icon inside the Edit Survey portion. By default, the navigation links appear as the following:
- Previous Button: Prev
- Next Button: Next
- Done Button: Done
- Exit Link: Exit this survey
- Done Button vs. Exit this Survey Option:
Your survey responses are recorded when you click on the [Done] button on the last page. Once clicked, the Survey Completion option occurs.
If you click the [Exit this Survey] link located at the top right-hand side of the page instead, then the survey completion option will still occur. However, the survey response will NOT be saved.
Example: If you have the completion option redirecting respondents to a URL, then that URL is going to open. If you do not want this to happen, it is best to "hide" the Exit navigation link. To do so, simply click the drop-down menu next to the [Exit Survey] navigation link under the Survey Options. Configure it to Hide Exit Link.
Exit Link Does Nothing:
If clicking the [Exit this Survey] link does nothing and the survey remains open in the browser window, please view the following troubleshooting topic: